A very close picture of an eye in black and white.

We Are Visible – Open Your Eyes

By Karina Sturm





“But you don’t look sick!”

‘We Are Visible’ gives a voice to a neglected community: People living with invisible disabilities specifically in the context of the rare condition Ehlers-Danlos syndrome (EDS). It showcases the challenges this community faces due to misconceptions surrounding invisibly disabled people and conveys the strength and resilience with which this community fights to become seen. Our condition might be invisible, but we are not!

We Are Visible

A powerful and moving film that shines a light on EDS, a little known disability. We Are Visible offers much food for thought–it has the power to teach the non-disabled to look upon disabilities of all kinds with compassion and understanding. The people who open themselves up for Sturm’s camera do not ask for pity, they simply want to be heard, to be accepted. Their courage and their honesty serves as an education for us all.

- David-Elijah Nahmod – Disabled Journalist & Film Critic

‘We Are Visible’ shines a bright but caring light on two very poorly understood and treated conditions, Ehlers-Danlos Syndrome and the many challenges of having and living with an ‘Invisible Disability’. 

- Jon Rodis - National Disability and Medical Advocate for Rare Disorders

Your documentary is powerful! You teach the world about your experiences, and the experiences of countless people around the world living with invisible disabilities. I hope many doctors and healthcare professionals watch this so they can be more informed.

- Haben Girma - Deaf-blind disability rights lawyer, author, speaker